Day #153

Josie decided Mama needed her face washed so grabbed a baby wipe, several actually, and nearly rubbed me raw!

Today was a bit odd for everyone, it was day one of a new student film project for us, and I apologize Reed if we were a bit stiff but as time goes on we will loosen up, we will all get used to being filmed and you will be able to get some good footage of the girls, I promise. Also, if you give us a list of all the questions you would like answers to, or guidance in some fashion you won't get puzzled looks or quite so many "um" responses. I like your go-with-the-flow attitude and think this will be a fun project for all.

It was funny to see how the girls acted so differently with the camera around. Josie kept striking dance poses and getting her to work during session was a bit tricky. When we went on a walk Maeve was the most perfect little lady, walking around the cemetery without a hitch. Polar opposites and quite comical!

Oh and I got a call back from our pediatrician, she got Maeve's blood and MRI results to read from our neurologist and genetically Maeve shows Miller-Dieker Syndrome but the MRI shows a normal brain with NO abnormalities due to the syndrome. She has been referred to the geneticist who is also a metabolic specialist because it could be due to a metabolic disorder (the way her body breaks down proteins) So as of now we have no definitive answers and she is "a challenge to diagnose" as our wonderful pediatrician put it but it is still good news to me since her brain is "normal" :D I am a happy Mama right now!